Thursday, December 26, 2013

COMBAT LOG RB#1: Sometimes "Nothing" Matters

Boys,

What a bit of excitement! David gave Gregory a shot of 30u of 'nothing'.

With syringes, you can inject air; in fact, when you intend to remove insulin from a vial you are instructed to first inject a volume of air equal to the amount of insulin you intend to remove.

Being the bad person that I am, I usually inject a few hundred units of air at a time and then only draw up the syringe with insulin when the pressure inside is enough to start pushing the plunger out. I don't go past this point since I assume that with enough pressure the top will eventually pop just as the cartridge did when Gregory went to camp 3 hours away.

With insulin pens, there is a bottom that moves according to the pressure of the contents. Since I frequently mix insulin for you guys since you aren't quite 'there' yet, I will draw out of an insulin pen leaving a gap between the bottom and the screw that forces it out.

So, first let's assess if this needs to be addressed immediately:

RISK ASSESSMENT: Priority

Is it important to tell someone when a mistake happens with Insulin?

YES! First, you simply do not have enough education nor experience to know what will kill you and what won't kill you. Until you do, you need to know who you are going to immediately ask, "Will this mistake kill me?" If in doubt, 9-1-1. No, I am not kidding nor exaggerating. Today, I was your GOTO person.

As your GOTO Person said, if you inject enough air and it hits one obscure bad path, you can die from an 'embolism' so it is worth the time to assess your risk of embolism.

RISK ASSESSMENT: Embolism

What is an embolism?  In medicine, an embolism (plural embolisms; from the Greek ἐμβολισμός "insertion") refers to the lodging of an embolus, which may be a blood clot, a fat globule or a gas bubble in the bloodstream, which can cause a blockage.[1] Such a blockage (vascular occlusion) may affect a part of the body distanced from the actual site of the embolism.

How confident are we that air was injected into Gregory?

As we finally determined, We are confident that air was NOT injected into Gregory. Why? Because David was able to queue up more units and it was still air.

AWESOME! Gregory gets to live to see another day! T1D wiped us a few times this go, so let's check the combat log and learn something.

CHECK THE COMBAT LOG & LEARN SOMETHING:

When Gregory was in the hospital, several different professional T1D trainers explained that the biggest danger of air in the syringe is that it displaces insulin so there will inevitably be a high BG. That was reinforced during the annual pede T1C lectures through KP. I seem to remember that it is also apparently quite painful. That said, someone always ends up winning the lottery and every year someone gets struck by lightning so it could be you! What precautions should we take?

HOW DID THIS HAPPEN?

First, it's always my fault. I pulled a job too big and the group wiped. Tank's fault.

I set us up for this problem by adding variety to our routine and mixing insulin to halve the number of shots you get.

Also, I usually triple check you double checking each other. In fact, I think this was the first time I purposefully didn't. The wipe means my job of triple checking isn't complete yet.

David should have caught that the plunger was not flush against the insulin when he double checked.

Gregory should have done a safety shot where he would have noticed the problem because insulin didn't come out.

RISK ASSESSMENT: RECIDIVISM

What is RECIDIVISM?  Recidivism (/rɨˈsɪdɨvɪzəm/; from recidive + ism, from  Latin recidīvus "recurring", from re- "back" + cadō "I fall") is the act of a person repeating an undesirable behavior after they have either experienced negative consequences of that behavior, or have been treated or trained to extinguish that behavior. It is also used to refer to the percentage of former prisoners who are rearrested for a similar offense.

There is a reason we do safety shots. There is a reason we double check queued shots. There is a reason I've been triple checking you double checking each other. And finally, there are reasons that I want you to not need me to be triple checking your double checking.

I think that the Recidivism Risk is HIGH until we have BGs more consistently in a healthy range and a better system for meals.

Therefore, I need to keep triple checking stuff.

GAMBATTE!

-mom

Saturday, December 7, 2013

NOT FAIR! list

Boys,

Here is an incomplete list of the things we do not get to complain about while problem solving since we can't currently solve them. (We can add more throughout the year.) We just have to adjust to the reality that they are outside our control so our strat needs to address dodging rather than defeating them... for now.

In WoW, I think this would be analogous to using CC (crowd control).

It's kinda like getting saved to a dungeon instance unintentionally. It doesn't really matter how it happened, you have to go through GMs to get it fixed. Your raid-mates are not able to fix it.

Sometimes it's worth talking to the GM. Sometimes it isn't.

I suppose God would be the GM in this model, but I have a hard time likening God to the GM of a video game. Besides, it is ALWAYS worth talking to God.

These topics are off limits during regular powwows.


  • Having T1D is completely unfair.
  • Waldo's administrative incompetence was completely unfair.
  • Your dad's inability to perform his roll is completely unfair.
For each unfair item, let's also list something for which we have been shown grace that we don't deserve.

  • Grandma Cindy's unending love and assistance.
  • Connections Academy's flexibility as we oscillate between excelling and failing.
  • Jason spoiling us by stocking the pantry and giving us electronics we could not afford contemporaneously with our need.
GAMBATTE!

-mom

Thursday, December 5, 2013

Raid Boss #10: Legacy

Raid Boss #9: c00king g00d m00d f00d

Raid Boss #8: Boy Scouts

Boys,

You've heard the expression "work smarter, not harder". Boy Scouts is on our Raid List because it offers an opportunity to be rewarded for learning life skills. You are too smart not to become Eagle Scouts, but you need to know how to follow a path before you worry too much about which path should I follow.

Think itai! v ouch!

These merit badges all cover things on my current 'honey do' list or other life skills that we are working on. If we can cruise through the 'meeting expectations' part of the list, we can plan to solve our RL problems and earn merit/rank badges at the same time!  These workbooks have been printed and I believe we own their official booklets:

Emergency Preparedness
Communication
Family Life
Art
Sustainability
Home Repairs
Computers
Tenderfoot
Second Class
First Class
Disabilities Awareness
Personal Management
Cooking

These are our 'achievements'. In WoW, as dungeons become easier it is fun to try for various achievements since you are already in there anyway. Just like your badges, the achievements offer you an opportunity to do something a little bit bigger and earn brag rights. In WoW it's just a list of dates. In Boy Scouts you earn badges and ranks.

Gambatte!

-mom





Raid Boss #7: Valley River Church

Raid Boss #6: Chores

Boys,

This is the last boss that falls under the heading of "meeting expectations".

--incomplete--

GAMBATTE!

-mom

Raid Boss #5: Connections Academy

Boys,

Your career, as 12 year olds, is 7th grade.

In a raid, you must defeat the early bosses before you can get to the end bosses. There are occasional variations, but before we can down RB#5, we MUST down RB#1-4.

The only things that are more important than school, are those things that prevent you from being able to perform your school work. Notice that T1D, vWd, ADHD, and Hygiene are the only bosses before school and each of those bosses will prevent you from being able to perform your duties as a 7th grader.

All three of you boys are BRILLIANT! And yet, it is all for naught if you aren't able to communicate that knowledge effectively. With your school work, you have an uncanny ability to learn, but you all three struggle to present that knowledge to the teacher in a meaningful way.

If T1D, ADHD, vWd, and hygiene truly prevent you from doing your schoolwork, we CAN take time off from school formally to deal with them and let you repeat 7th grade next year.

Your actions, not your words, will determine if that is what we should do.

--incomplete--

GAMBATTE!

-mom

Raid Boss #4: Hygiene

Boys,
This is wikipedia's introduction to the topic of HYGIENE:
"Hygiene is a set of practices performed for the preservation of health. While in modern medical sciences there is a set of standards of hygiene recommended for different situations, what is considered hygienic or not can vary between different culturesgenders and etarian groups. Some regular hygienic practices may be considered good habits by a society while the neglect of hygiene can be considered disgusting, disrespectful or even threatening.
Sanitation involves the hygienic disposal and treatment by the civic authority of potentially unhealthy human waste, such as sewerage and drainage"

Addressing hygiene with you isn't intended as an insult, but I'm confident you don't know how many things fall under this umbrella. Here are some topics included under this heading:
  • Hand Hygiene
  • Respiratory hygiene
  • Food hygiene
  • Household water treatment and storage
  • Hygiene in the kitchen, bathroom and toilet
  • Laundry hygiene
  • Medical hygiene at home
  • Personal hygiene
  • Excessive hygiene (eg. ears/skin)
We will take all of these on throughout the year, but we will start addressing this boss by utilizing our TODO lists.

--incomplete--

GAMBATTE!

-mom

Raid Boss #3: von Willebrand's disease

Boys,

This is the boss that I am having complications with of my own, but fortunately for you it is mostly a nuisance.

You already know von Willebrand's disease prolongs bleeding. You've heard about my 10-12 hour nosebleeds growing up that only ended after a couple ER visits and medicine driven down from the Hemophillia Foundation in PDX and you have unfortunately heard about more of my 'girl problems' than any parent wants their kids to know.

Basically, your blood will clot but that clot doesn't stick to the blood vessel.

We believe all three of you have it due to a combination of circumstantial evidence and blood work, but eventually genetic testing can be done to confirm Dx.

For males, having vWd means nosebleeds and Stimate in the fridge most of the time, but it becomes top priority if there is trauma.

You are big enough to use two squirts nowadays and make sure you clean the part that goes in your nose before putting it back! Also, if the Stimate is left out it goes bad much quicker than insulin so please make sure to put it away. It doesn't cost as much as it used to, but it still isn't cheap.

Please keep in mind that blood is labelled a bio-hazard for a reason. We deal with it a lot, but it makes people uncomfortable for good cause.

Be conscientious! 

Enjoy this boss being on "farm status" as much as you can!

GAMBATTE!

-mom



Raid Boss #2: ADHD





Boys,

The ADHD boss is a lot like Niagra Falls. Either a huge obstacle or a huge asset depending on how the force behind it is directed.

---incomplete

GAMBATTE!

-mom



RB#1: Debuffs and DPS goal

Current Progression Goal:    Raid Boss: T1D (considered defeated when A1C<9)
 Raid leader: Jason  ::  Tank: Veronica  ::  Healer: Cindy  ::  DPS: Anthony, David, Gregory
Raid Leader's Input:
“If you do not change direction,
you may end up where you are heading.”
- Lao Tzu
Boys,

Raid progression is a funny thing. When you have the same group of people focusing on their own unique job and you keep pulling the boss with a good strat, eventually it clicks and all of a sudden the boss is accidentally dead.

It is inevitable that we will defeat this T1D boss.
The only thing that will stop us is if we quit trying.

For this raid, we are using the following for our Raid Boss Guide: "Nurse's Guide to Teaching Diabetes Self-Management" by Rita Girouard Mertig. There are 12 chapters, but not all will be relevant to us. We will start with the last entitled, "Client Noncompliance (Nonadherence)".

Warriors can't heal.


For the benefit of those of us who find it obligatory to list the exception to every rule I will state that there has actually been at least one boss fight where the healing done from some weird rage thing that the warrior tank had a special talent in did indeed make the difference between us living and wiping. That said, warriors still aren't healers and that one time something weird happened IRL doesn't change generalities about T1D. It would still be silly of us to bring along a warrior as a healer.

There are RL T1D Debuffs that make it harder to down this boss and we have to be prepared for all of them. Some debuffs are "can't" while others are "won't". "Won't" is kinda like standing in fire. It just doesn't matter what others do, you are at the keyboard and we can't "heal through stupid". "Can't" is kinda like tweaking your gear. Yo Mama thought it was cool to wear a tiara and spiked heels so you wore it to raid and now we have to make you go change clothes for battle.


" C a n ' t "
Financial considerations
Physical limitations
Deficient knowledge
Literacy
Culture
Religious constraints
Insufficient support system


" W o n ' t "
Denial
Anger and frustration
Depression
Stress and excessive fear
Fatalism
Diabetes burnout
Self-determination



When having difficulty with diabetes control, it is important to clarify values and to understand the consequences of each action or inaction.


Is it harder to ignore high BGs when we know the damage it will do to our body? It should be! Unfortunately, while ignorance is bliss, it doesn't change the consequences of inaction.

Page 259 reads, "The real proof of control is whether a 2-hour postprandial blood sugar stays under 140 mg/dl." You know how I'm having you test throughout the day to see if you are 'sober'? (sober = of sound mind) For our T1D Raid we are considering 80-199 as 'in range' and each reading, regardless of when you ate, outside of that range makes you 'not sober'. Will you live if you stay in the 200s or 300s? Yes! But, you are doing damage to your body that cannot be undone and that WILL affect the quality of your life in a manner which you are not capable of understanding at this time. 

We now have two more important bits of information about this boss. We have a list of known debuffs and we have our quantifiable DPS goal of BGs between 80 and 199.

Now, which debuffs can YOU counter?

GAMBATTE!
-mom

Raid Boss #1: T1D

Boys,

Diabetes sucks.

     Mismanaged diabetes zetta-sucks.

Well-managed diabetes isn't a disability.

     Mismanaged diabetes IS a disability.

This is the 'gear check' boss. If you can't get it down, don't waste time clearing the trash mobs. The further from 80-199 you get, the less sober you will be. Everything you do will be biased by your T1D. You can either learn to live well with it or survive with it because if you don't, it will kill you.

BOSS IS DEFEATED WHEN A1C<9.

LOOT:

REPUTATION and EXPERIENCE points

Sober mind; Longer life; deferred complications; improved general well-being; pride; $$$

$$$: When your A1C is under 9, each of you will be rewarded. Your health is very important to me so this success warrants a serious financial prize in our current GDKP economy. David and Gregory will each receive $200 for their own A1C<9 and an additional $200 for their brother's A1C<9. Anthony will receive $200 for each brother's success.

DPS REQUIREMENT:

BGs should be 70-140, but we are extending that to 199.

WEAPONS:

"T1D Weekly Summary" worksheet (PURPLE): One side has insulin information. The other has your BGs for Pre-Breakfast, Pre-Lunch, Pre-Dinner, 8pm and 10pm.

"Whatcha Doing?" worksheet (PRIMARY): We will cultivate your own personal daily TODO list on one side while you record actual activities on the other side.


Where we are:

Phase 1: Completion. How complete are your worksheets? Each side = 25% of daily ABCDF grade.


What we add next:

Phase 2: Range. (Phase 1 = 50%; Phase 2 = 50%)

5 BGs/day x 7 days = 35 points possible. Reported as ABCDF grade.

BG<70 = PURPLE = .5 point
70-79 = BLUE = 1 point
80-199 = GREEN = 1 point
200-399 = YELLOW = 0 point
400-599 = ORANGE = -0.5 point
600+ = RED = -1 point

Phase 3: TBD (Phase 1+2 = 50%; Phase 3 = 50%)


COMBAT LOGS:

Q: Who cares about combat logs?
A: Anyone who wants to improve their strat.

For now, your worksheets are your T1D log. We will adjust ratios and plan based on those worksheets. Mismanaged T1D means we wipe a lot so we must frequently check BGs. Those with well managed T1D only need to check a few times a day.

With demonstration of your willingness to help yourself, you help others help you manage better. There are a lot of options we aren't discussing because things are so chaotic. CGMs, pumps, even NPH - all can be lifestyle changing, but are not an option when we can't demonstrate mastery of the basics.

SABOTAGE:

The most frustrating thing you guys have done as children is lie about your BGs. You are children and shouldn't have to deal with the morbid reality of your disease, but since that is on our "NOT FAIR!" list, we need to address that lying sabotages our efforts to keep you alive and well. The more trustworthy you are, the fewer decisions I have to make for you, and the more opportunities you will be able to pursue.

FINAL NOTE:

I love you. This boss sucks. We'll get through it! It's just a matter of how banged up we get in the process.

GAMBATTE!

-mom

Wednesday, December 4, 2013

Raiding: comp revisited

Boys,



another thing to consider is ability, gear, and availability.

member pros and cons list


--unfinished--

Raiding: Composition

Current Progression Goal:
     Raid Boss: T1D (considered defeated when A1C<9)
     Raid leader: Jason
     Tank: Veronica
     Healer: Cindy
     DPS: Anthony, David, Gregory
Boys,

Let's discuss RAID COMP.
In WoW there are 10 classes: Hunter, Paladin, Priest, Druid, Warrior, Shaman, Mage, Rogue, Death Knight, and Warlock. Each of these classes has three sets of skills and some are better suited for one thing over another while others are simply incapable of certain tasks. For example, you aren't going to get much healing from a Warrior yet Druids are capable of tanking, healing, melee DPS, and ranged DPS yet are often thought of as the master of none.
There are also several different races: Human, Dwarf, Gnome, Tauren, Troll, Orc, Blood Elf, and Night Elf. (I don't recall the Panda changes.)  Each of these races have its perks. I remember changing my Tauren to a Troll for the haste buff when healing was hard with the new xpac. I missed my Tauren stomp/stun, but the change gave me one more trick to pull out of my hat when things were going sour while healing.
We can't change our race IRL, but there are traits that we have in each of us that make use unique. Sometimes those traits are helpful and sometimes they are a limitation. Fortunately, when you are part of a raid team you seem to have more chances to show off that one thing that makes you better than others at a certain job.

Each class offers the raid a different buff. As a druid healer, I provided a 'Mark of the Wild' buff to each member that simply made everyone a bit better at whatever they were doing anyway. As a shaman, I put out specific totems that cast a buff for a limited time for a limited purpose. Combine these in a traditional raid group with the other buffs different toons provide, and 
WE are stronger than the sum of our parts.
So... now that we are planning our RL 2014 T1D raid,
what raid buffs will you bring?
Which of your weaknesses need to be covered with someone else's strength?
Which of your talents will we want to use for our strategy?

Finally, there is a common understanding among serious raiders that if the tank dies, it's the healers fault; if the healer dies, it's the tanks fault; and if the DPS die, it's their own fault.

Obviously, IRL, we are not killing off the DPS, but this is worth noting. If the raid leader, tank, and the healer all do their job and the raid still wipes... the DPS weren't doing their job. 

IRL, we've been wiping a bunch on the T1D boss. T1D is a very well documented boss. We have access to plenty of information about how others have defeated it, so the only reason we haven't downed it yet is because we haven't attacked it with a proper group doing their proper jobs. Your raid leader, tank, and healer are now on on their assigned jobs.

All eyes are on you...

GAMBATTE!

-mom


Raiding: PUGs, Guilds, and Raids

Boys,

What is a PUG?
Pick Up Group

In WoW, there is the initial game of levelling from 1-X (x = whatever current content goes up to; for our RL game we are going to use 1-100) followed by PVPing and Raiding. Not everyone who plays levels 1-100 wants to PVP or Raid. While I got my toes wet PVPing, I preferred raiding. The bosses are known and can be studied. Strategies can be researched and tried by changing one variable at a time until finally you figure out what works for your specific group.

Guilds offer numerous opportunities for various levels of play and commitment. Within a guild there is a leader and unique set of guidelines. For some guilds, there are opportunities for lvls 1-100, and for others they won't even grant you membership until you are epiced out. There are pros and cons to each of these.

RL Guilds come in the form of churches, schools, or even Boy Scouts. Each is a subset of our community with something in common binding them together. Over generations they come into fruition and then fade into memory with each new tide bringing in both death and the new life that will replace it. There are benefits that come from establishment and of course frustrations when obvious changes can't get made.

PUGs, on the other hand, are formed on the fly. They come without the long term commitment of a guild, but are then limited by their immaturity.

Each raid needs a raid leader, tank, healer, and DPS.

The
raid leader's job is to research strategy and keep the group on course. Sometimes, a bad call is made because he doesn't have all the information necessary to make the right decision, so it's important for raid members to know which bits of information are superfluous and which are significant.

The
tank goes around picking fights. Raid members know overall which bosses are on the agenda, but the tank gets to determine which mobs get pulled and how. It's important to keep pulling at a rate where progress is being made, but cautiously enough that time isn't wasted unnecessarily due to wipes.

Healers heal. It's probably the most sociable job because you get to ignore most of the raid chat and stay in your own little world, but it is a crucial part of the group. Tanks can only take so many hits before they die and a good healer provides the protection and regeneration necessary for the entire group to progress.

And progression is ALWAYS the goal.
(Progression = doing BETTER!)

Raid Boss #1: T1D (considered defeated when A1C<9)
Raid leader: Jason
Tank: Veronica
Healer: Cindy
DPS: Anthony, David, Gregory

GAMBATTE!

-mom